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Welcome to Natural Pain Relief For Fibromyalgia

Fibromyalgia fact sheet

What is fibromyalgia?

Fibromyalgia (fye-bro-mye-AL-ja) is a disorder that causes aches and pain all over the body. People with fibromyalgia also have “tender points” throughout their bodies. Tender points are specific places on the neck, shoulders, back, hips, arms, and legs that hurt when pressure is put on them.

What are the symptoms of fibromyalgia?

In addition to pain, people with fibromyalgia could also have:

  • Cognitive and memory problems (sometimes called “fibro fog”)
  • Trouble sleeping
  • Morning stiffness
  • Headaches
  • Irritable bowel syndrome
  • Painful menstrual periods
  • Numbness or tingling of hands and feet
  • Restless legs syndrome
  • Temperature sensitivity
  • Sensitivity to loud noises or bright lights

How common is fibromyalgia? Who is mainly affected?

Fibromyalgia affects as many as 5 million Americans ages 18 and older. Most people with fibromyalgia are women (about 80 – 90 percent). However, men and children also can have the disorder. Most people are diagnosed during middle age.

Fibromyalgia can occur by itself, but people with certain other diseases, such
as rheumatoid arthritis, lupus, and other types of arthritis, may be more likely to who have it. Individuals have a close relative with fibromyalgia are more likely to develop it themselves.

What causes fibromyalgia?

The causes of fibromyalgia are not known. Researchers think a number of factors might be involved. Fibromyalgia can occur on its own, but has also been linked to:

  • Having a family history of fibromyalgia
  • Being exposed to stressful or traumatic events, such as
    • Car accidents
    • Injuries to the body caused by
      performing the same action over and over again (called “repetitive”
      injuries)
    • Infections or illnesses
    • Being sent to war

How is fibromyalgia diagnosed?

People with fibromyalgia often see many doctors before being diagnosed. One reason for this may be that pain and fatigue, the main symptoms of fibromyalgia, also are symptoms of many other conditions. Therefore, doctors often must rule out other possible causes of these symptoms before diagnosing fibromyalgia. Fibromyalgia cannot be found by a lab test.

A doctor who knows about fibromyalgia, however, can make a diagnosis based upon two criteria:

  1. A history of widespread pain lasting more than 3 months. Pain must be present in both the right and left sides of the body as well as above and below the waist.
  2. Presence of tender points. The body has 18 sites that are possible tender points. For fibromyalgia diagnosis a person must have 11 or more tender points. For a point to be
    “tender,” the patient must feel pain when pressure is put on the site. People who have fibromyalgia may feel pain at other sites, too, but those 18 sites on the body are used for diagnosis.

Your doctor may try to rule out other causes of your pain and fatigue. Testing for some of these things may make sense to you. For instance, you may find it reasonable that your doctor wants to rule out rheumatoid arthritis, since that disease also causes pain. Testing for other conditions — such as lupus, multiple sclerosis, or sleep apnea — may make less lupus, sense to you. But fibromyalgia can mimic or even overlap many other conditions. Talk with your doctor. He or she can help you understand what each test is for and how each test is part of making a final diagnosis

How is fibromyalgia treated?

Fibromyalgia can be hard to treat. It’s important to find a doctor who has treated others with fibromyalgia. Many family doctors, general internists, or rheumatologists can treat fibromyalgia. Rheumatologists are doctors who treat arthritis and other conditions that affect the joints and soft tissues.

Treatment often requires a team approach. The team may include your doctor, a physical therapist, and possibly other health care providers. A pain or rheumatology clinic can be a good place to get treatment. Treatment for fibromyalgia may include the following:

  • Pain management. Three medicines have been approved by the U.S. Food and Drug Administration (FDA) to treat fibromyalgia. These are pregabalin (Lyrica), duloxetine (Cymbalta), and milnacipran (Savella). Other medications are being developed and may
    also receive FDA approval in the future. Your doctor may also suggest non-narcotic pain relievers, low-dose antidepressants, or other classes of medications that might help improve certain symptoms.
  • Sleep management. Getting the right amount of sleep at night may help improve your symptoms. Here are tips for good sleep:
    • Keep regular sleep habits. Try to get to bed at the same time and get up at the same time every day — even on weekends and vacations.
    • Avoid caffeine and alcohol in the late afternoon and evening.
    • Time your exercise. Regular daytime exercise can improve nighttime sleep. But avoid exercising within 3 hours of bedtime, which can be stimulating, keeping you awake.
    • Avoid daytime naps. Sleeping in the afternoon can interfere with nighttime sleep. If you feel you cannot get by without a nap, set an alarm for 1 hour. When it goes off, get up and start moving.
    • Reserve your bed for sleeping. Watching the late news, reading a suspense novel, or working on your laptop in bed can stimulate you, making it hard to sleep.
    • Keep your bedroom dark, quiet, and cool.
    • Avoid liquids and spicy meals before bed. Heartburn and late-night trips to the bathroom do not lead to good sleep.
    • Wind down before bed. Avoid working right up to bedtime. Do relaxing activities, such as listening to soft music or taking a warm bath, that get you ready to sleep. (A warm bath also may soothe aching muscles.)
  • Psychological support. Living with a chronic condition can be hard on you. If you have fibromyalgia, find a support group. Counseling sessions with a trained counselor may improve
    your understanding of your illness.
  • Other treatments. Complementary therapies may help you. Talk to your physician before trying any alternative treatments. These include:
    • Physical therapy
    • Massage
    • Myofascial release therapy
    • Water therapy
    • Light aerobics
    • Acupressure
    • Applying heat or cold
    • Acupuncture
    • Yoga
    • Relaxation exercises
    • Breathing techniques
    • Aromatherapy
    • Cognitive therapy
    • Biofeedback
    • Herbs
    • Nutritional supplements
    • Osteopathic or chiropractic manipulation

What can I do to try to feel better?

Besides taking medicine prescribed by your doctor, there are many things you can do to lessen the impact of fibromyalgia on your life. These include:

  • Getting enough sleep. Getting enough sleep and the right kind of sleep can help ease the pain and fatigue of fibromyalgia. Most adults need seven to eight hours of “restorative”
    sleep per night. Restorative sleep leaves you feeling well-rested and ready for your day to start when you wake up. It is hard for people with fibromyalgia to get a good night’s sleep. It is important to discuss any sleep problems with your doctor, who can recommend treatment for them.
  • Exercising. Although pain and fatigue may make exercise and daily activities difficult, it is
    crucial to be as physically active as possible. Research has repeatedly shown that regular exercise is one of the most effective treatments for fibromyalgia. People who have too much pain or fatigue to do hard exercise should just begin to move more and become more active in routine daily activities. Then they can begin with walking (or other gentle exercise) and
    build their endurance and intensity slowly.
  • Making changes at work. Most people with fibromyalgia continue to work, but they may have to make big changes to do so. For example, some people cut down the number of hours they work, switch to a less demanding job, or adapt a current job. If you face
    obstacles at work, such as an uncomfortable desk chair that leaves your back aching or difficulty lifting heavy boxes or files, your employer may make changes that will enable you to keep your job. An occupational therapist can help you design a more comfortable workstation or find more efficient and less painful ways to lift. A number of federal laws protect the rights of people with disabilities.
  • Eating well. Although some people with fibromyalgia report feeling better when they eat or avoid certain foods, no specific diet has been proven to influence fibromyalgia. Of course, it is important to have a healthy, balanced diet. Not only will proper nutrition give you more energy and make you generally feel better, it will also help you avoid other health problems.

Will fibromyalgia get better with time?

Fibromyalgia is a chronic condition, meaning it lasts a long time — possibly a lifetime. However, it may be comforting to know that fibromyalgia is not a progressive disease. It is never fatal, and it will not cause damage to the joints, muscles, or internal organs. In many people, the condition does improve over time.

What is the difference between fibromyalgia and chronic fatigue
syndrome?

Chronic fatigue syndrome (CFS) and fibromyalgia are alike in many ways. In fact, it is not uncommon for a person to have both fibromyalgia and CFS. Some experts believe that fibromyalgia and CFS are in fact the same disorder, but expressed in slightly different ways. Both CFS and fibromyalgia have pain and fatigue as symptoms.

The main symptom of CFS is extreme tiredness. CFS often begins after having flu-like symptoms. But people with CFS do not have the tender points that people with fibromyalgia have. To be diagnosed with CFS, a person must have:

  1. Extreme fatigue for at least 6 months that cannot be explained by medical tests and
  2. At least 4 or more of the following symptoms:
    • Forgetting things or having a hard time focusing
    • Feeling tired even after sleeping
    • Muscle pain or aches
    • Pain or aches in joints without swelling or redness
    • Feeling discomfort or “out-of-sorts” for more than 24 hours after being active
    • Headaches of a new type, pattern, or strength
    • Tender lymph nodes in the neck or under the arm
    • Sore throat

What if I can’t work because of fibromyalgia?

Many experts in fibromyalgia do not suggest patients go on disability. These experts have found that if patients stop working, they:

  • Stop moving as much during the day
  • Lose contact with co-workers
  • Lose a “sense of purpose” in life

All of these things can make a patient feel more alone and depressed. These three things tend to make fibromyalgia symptoms worse. Deciding to go on disability is a hard choice that you should talk about with your doctor or nurse.

However, if you cannot work because of your fibromyalgia, contact the Social Security Administration for help with disability benefits. You may qualify for disability benefits through your employer or the Federal Government. Social Security Disability Insurance (SSDI) and Supplemental Security Insurance (SSI) are the largest Federal programs providing financial assistance to people with disabilities. Although the medical requirements for eligibility are the same under the two programs, the way they are funded is different. SSDI is paid by Social Security taxes, and those who qualify for assistance receive benefits based on how much they have paid into the system. SSI is funded by general tax revenues, and those who qualify receive payments based on financial need. For information about the SSDI and SSI programs, contact the Social Security Administration at
800-772-1213.

What research is being done on fibromyalgia?

The National Institute of Arthritis and Musculoskeletal and Skin Diseases sponsors research to help understand fibromyalgia and find better ways to diagnose, treat, and prevent it. Researchers are studying:

  • Why people with fibromyalgia feel a lot of pain
  • How exercise can help patients withfibromyalgia
  • Medicines and behavioral treatments

More information on fibromyalgia

For more information about fibromyalgia, call womenshealth.gov at 800-994-9662 (TDD:
888-220-5446) or contact the following organizations:

Information provided by the Womenshealth.gov

Office on Women’s Health, U.S. Department of Health and Human Services

Fibromyalgia fact sheet was reviewed by:

Daniel Clauw, M.D. 

Director of the Chronic Pain and Fatigue Research Center

University of Michigan

Content last updated June 29, 2010.

 

For an alternative view and drug free approach to pain relief for Fibromyalgia:


http://naturalpainreliefforfibromyalgia.com/1549

   Disclaimer:
All content contained within this website is not intended to treat, cure or
diagnose in any way. All content is commentary or opinion and is protected under
the free speech act.

2011 All
Rights Reserved

 

 

 



Welcome to Natural Pain Relief For Fibromyalgia

Fast Food Babies

Are we raising a generations of nutritionally depleted children? Add aspartame, MSG, GMO into the mix and we are asking for disease!

Will these children make it to their teen years? Heart disease, tooth decay, obesity, irritability or rickets?

 


http://naturalpainreliefforfibromyalgia.com/1759

   Disclaimer: All content contained within this website
is not intended to treat, cure or diagnose in any way. All content is commentary
or opinion and is protected under the free speech act.

2011 All Rights Reserved

 

 

 

 

 


Welcome to Natural Pain Relief For Fibromyalgia

 

Chronic Pain Relief

There is so much advice out there about chronic pain but what really works?

Sufferers are so mislead by the media because there is such a big profit opportunity from people who are desperate to end their pain.

– Drug companies advertise on tv that their pill is the secret to living a great life as they list off their side effects that take up half the commercial time.

– Tylenol companies advertise that their pain pills “get you back to normal”.

Is that what the world has come to? We are normal if we are drugged up on prescription medications and pain meds?

We are so desperate to find relief we try this and that only to find that it isn’t
really working.

We have to put up with side effects such as:

– weight gain, head aches, stomach pain, swelling, constipation, diarrhea, decreased sexual desire or ability, dizziness, drowsiness, dry mouth, increased sweating, loss of appetite, increased appetite, sore throat, tiredness, trouble sleeping, vomiting, weakness.

Then there are the more severe symptoms of:

– severe allergic reactions such as  rash, hives, itching, difficulty breathing,
tightness in the chest, swelling of the mouth, face, lips or tongue, unusual
hoarseness, bizarre behaviour, bloody or black tarry stools, blurred vision,
confusion, dark urine, decreased concentration, decreased coordination,
fainting, fast or irregular heartbeat, fever or chills, hallucinations, memory
loss, mouth sores or ulcers, new or worsening mental or mood changes eg.
aggressiveness, agitation, anxiety, depression, hostility, impulsiveness,
irritability, panic attacks, restlessness, pale stools, red swollen, blistered
or peeling skin, ringing in the ears, seizures, severe or persistent dizziness
or headaches, nausea, vomiting, diarrhea, tiredness, weakness, trouble sleeping, sluggishness, stiff muscles, stomach pain, suicidal thoughts or attempts, tremors, trouble urinating, unusual bruising or bleeding, unusual weakness, vomitting that looks like coffee grounds, yellowing of the skin or eyes.

Then we have the unfortunate who experience

– heart attacks, strokes, kidney damage, liver damage, successful suicides, anaphylaxis shock and even death.

That is quite a list isn’t it? And all from these drugs that are going to help with your pain and change your life as you know it. Helping you with your pain. That list came mostly from the Cymbalta side effects list, one of the drugs of choice for Fibromyalgia.

I looked to the medical system for years and I experienced a long list of the above and a near death situation. If I didn’t have such a big will to live I wouldn’t be here. Well believe me, if you keep taking pills year after year you WILL develop stomach problems along with a wide array of new symptoms. It seems like you keep adding illnesses to your list of conditions and they keep adding pills for the symptoms which mostly come from the pills. It is like a domino effect that keeps you falling the wrong way, into a chronic pain syndrome instead of out of pain, you become weakened and more dependant on everyone.

There is another way and I am finding my way out of the deep dark hole of our current medical system that didn’t work for me. It was weakening my body to a point that I didn’t find much reason for living. Nothing worked, pills had me to a point that I couldn’t eat anything because it caused so much internal pain, I couldn’t sleep, I couldn’t wake up, I was in a permanent brain fog and on and on. There was only one way to describe it, MISERY. I went for help and ended up getting more symptoms, more pain, more disbelief from sceptic doctors, more frustration and a lot of pills.

Now today is different. I am still in pain but I have learned how to deal with my it on such a positive level. My stomach is so much better, I have less symptoms, I can sleep better, the brain fog is gone, I know my triggers, I know how to deal with each symptom, I know when and what contributes to my pain and I feel alive instead of near death. That alone is worth it’s weight and gold. Before I dreaded living the rest of my life in the state I was in, now I feel there is a light and I am looking forward to being pain free one day. I look forward to having grandchildren one day and being able to be with them instead of them sitting in my wheelchair with me or lying in my death bed.

If you want to learn to live your life with your pain opposed to suffering your life away with pain, I invite you to sign up for my newsletter and follow my path to wellness. I want to help you help yourself out of a very hard life of the
chronic pain cycle. The answer isn’t in a pill bottle but in a wide array of
solutions. I can help!

Please read some of my articles that might help you and browse around the website. There is lots of information that will hopefully help you understand where some of your pain might be coming from.


http://naturalpainreliefforfibromyalgia.com/category/medicine


http://naturalpainreliefforfibromyalgia.com/category/fibromyalgia-info


http://naturalpainreliefforfibromyalgia.com/category/what-the-heck-is-in-our-food


http://naturalpainreliefforfibromyalgia.com/category/dangerous-foods


http://naturalpainreliefforfibromyalgia.com/category/petitions-worthy-causes

 

   Disclaimer: All content contained within this website
is not intended to treat, cure or diagnose in any

way. All content is commentary or opinion and is protected
under the free speech act.

2011 All Rights Reserved

 

 

 

 

 


Welcome to Natural Pain Relief For Fibromyalgia

Fibromyalgia and Brain Fog

What the heck is brain fog? One of Fibromyalgia’s symptoms is brain fog but just what is it anyways? If you search it out, they have many reasons for the brain fog, Fibro fog and some call it a cognitive dysfunction. Anywhere from:

– lack of restorative sleep

– abnormal blood flow

– brain abnormalities

– premature brain aging

– mental distraction due to pain

Personally, I can tell you that my brain is fine. When I gave up all medication, my brain fog left. The medication that left me in the worst, severe brain fog for hours upon rising was Cyclobenzaprine HCL or Mylan-cyclobenzaprine which is
a muscle relaxant. It was near impossible to wake up in the morning, I was like a zombie for hours.

A usual practice for treating Fibromyalgia is with anti-depressants when you are first diagnosed. They tell you it is to help you sleep, I beg to differ. I think if we go back to my article on the psychological mislabeling of Fibromyalgia  we
will see that it has been an illness that not too many believed it was real but rather in the patients head. When I took their anti-depressants to “help me sleep”, I lost so much sleep. I was awake until sometimes 2 in the morning, then trying to wake up was impossible. There was major “brain fog” that was drug
induced.

http://naturalpainreliefforfibromyalgia.com/1202

Now I can see that we can experience mental distraction due to chronic and intense pain but it doesn’t exactly qualify for the label of brain abnormalities now does it? Give me a break! Of course now, if you have brain abnormalities, you should seek help. If you have depression, you need to seek help, especially if you are suicidal. Don’t be alone with these illnesses, there is help, seek it out. Talk to someone who can help.

Lack of restorative sleep is a problem for all sufferers of Fibromyalgia, this is something I can relate to. The reason most of us have disrupted sleep is because of pain or we are getting up to go the bathroom. What I have found that has helped immensely is a few practical rules to keep in mind.

– don’t eat or drink 3 hours before going to bed

– do stretching exercises before going to bed

– invest in a good mattress, a good portion of your life is spent in bed and your back and neck need proper support

– a pillow that supports sore necks ( I have tried every support pillow going and the best thing I have found is to tie a string around the center of your pillow so it looks like a bowtie) It helps neck pain a lot.

– don’t sleep on your arm, they just found it can cause heart problems. I used to sleep with my arm under my pillow and I had shoulder pain so bad it kept me awake at night. I found a slim pillow that I have under my bow tie pillow and it has
allowed me to sleep without laying on my arm and has helped with the shoulder pain.

– on a really sore area natural creams can help immensely like Traumeel, apply it before going to bed so you can get to sleep comfortably.

– a pillow between your legs can help knee pain and hip pain

– try to eliminate caffeine from your diet and certainly stay away from those energy drinks, they aren’t good for anyone

– try meditation and visualization before bedtime. Try to visualize yourself having a restful nights sleep, it might help trigger your subconscious mind to have a good night sleep. Meditation can help relieve the stress of the day.

– breathing exercises help increase oxygen flow to the body

How about premature brain aging? The fact that our brains age prematurely doesn’t have to do with Fibromyalgia per say but rather applies to any and every human alive. Here are some things that can age the brain prematurely:
– eating the wrong food

– lack of essential oils

– lack of brain nutrition

– not exercising our brains

– watching Jerry Springer (lol)

– failure to keep educating ourselves

– taking too many street drugs

– taking too many prescription drugs

– not getting the right nutrition, vitamins and minerals

– having too many toxins build up in the brain

– not getting the right fats (today’s modern diets are high in the wrong fats and low to nil in the right fats)

– not enough fibre to grab hold of cholesterol and fat to usher them out of the body

– if we don’t feed our brains then you will get premature aging

– lack of exercise

– failure to keep learning

– stress

– over work

– over exertion

– too much of anything is not good

– In the book “Eat away illness” by Carlson Wade he says scientists theorize that a nutrient called choline is able to strengthen neurotransmitters or “telegraph signals” between the nerve systems in the brain. Choline can help replenish and
rejuvenate  cells to help you think young again.  He  says
choline is available as a supplement and is especially potent in a substance called lecithin. Derived from soybeans or sunflower seeds, lecithin may well be the key to having a “young mind” in a young body. Now I advise here since this book might have been made before the genetically modified foods were introduced
into our food chain that you need to buy this in organic form as you will find yourself in more trouble taking a genetically modified form derived from soy, please beware.

Have you ever heard the term, if you don’t use it, you lose it. That applies to intelligence as well as our bodies. How can the brain keep focus and youthful when we are filling it with gossip, drugs, toxins and nutritionally void foods?

What can we do?

– eat the right kind of fats, olive oil, sesame oil, coconut oil

– eat high soluble fiber foods from beans, oats, barley, carrots, apples, prunes (ew),  and figs (ew)  : )  Wheat and wheat bran are insoluble fiber, more for irregularity but high in allergens and can cause a myriad of symptoms. High fiber can flush away colon cancer before it takes hold of you. In the book the
ABC’s of nutrition they warn of two cautions: Don’t overdue fiber until you’re used to it, and don’t use fiber pills. Sone of the pills begin swelling up while they’re still in your throat, and a serious blockage can result.


Recommended 20 to 35 grams of fiber a day

Pears, Cherimoya, triticale (raw), cowpeas, corn bran (raw), Amaranth seeds, (raw), Miso, blackberries, Chickpeas, kidney beans, lima beans, refried beans, baby lima beans, mamey, black beans, Ralston cereal, raspberries (my most favourite food in the world, um), apples, whole wheat spaghetti, peaches, figs, lentils, succotash, figs, guava, navy beans, zante.

No wonder we have so much colon cancer and digestive problems today. I can see why we have trouble getting the right amount of fiber a day since most of these foods are non existent in the modern diet. We can add kidney beans to our chili, refried beans to our tacos, eat peaches or apples everyday. I have a great scratch recipe for navy beans that are better than any canned pork and beans. If your colon is blocked, your whole system can be affected.

Read:

http://naturalpainreliefforfibromyalgia.com/1023

What is your brain made of?

– fats and proteins

– 100 billion nerve cells (wow, no wonder things can go wrong)

What do we need to keep it healthy?

If it is made of fats and proteins then that could be a very good hint that it is vital that we need to feed it with the right fats and proteins to keep our brains from Alzheimer’s, dementia and premature brain aging.

Read everyday and learn something. 

When it comes to answers, we need to listen to the people. This is what really matters, not some chemist, doctor or drug company who hasn’t experienced the pain of Fibromyalgia but the people who are seeking answers, not just another drug to
try. We can only mask the pain for so long, believe me, 21 years of chronic pain, listening to doctors and taking their pills with no avail. Now I seek solutions, no more band aids. So let go back to the basics.

I was reading the comments on the Fibromyalgia article on brain fog in arthritis today. Leon wrote, had a hair test done and he showed high levels of mercury. Interesting, I had all my mercury fillings removed and did a cleanse, it has made a major difference in my life. Shelly Jordan has been through so many drugs that didn’t help. I hear you girl! Tammy F has had all kinds of CT scans and such and they all came back normal. Accused of  being over medicated, drug abuse, alcohol abuse, thought she was crazy, asked if there was a history of
mental illness in the family. I can relate to the ignorance of getting a diagnose and not being looked at as a hypochondriac. Bea said said the drug Saville helped her muscle pain but put her blood pressure and blood sugar out of whack that she thought she was going to die. I can also relate, are we supposed to damage other organs to help with pain? I think we need to find a better approach. I hope this article will help someone with their pain.


http://www.arthritistoday.org/conditions/fibromyalgia/all-about-fibro/fibro-fog.php

leon wrote Nov 22, 2011

Leon got his hair tested and found high levels of mercury

I suffered from this for the past 3 years it began I had a hair
test done they showed I had very high levels of mercury..I was losing it I
didn’t know where I was at times it was so strong I couldnt drive my car at that
time it was scary for me. I began taking different supplements like chlorella,
apple pectin, fish oil, alpha lipoic acid liquid form, chelorex dr Greenberg,
osr -which got shut down I still have some left it really helps. You may also
try yellow dock rumex crispus liquid it pulls toxins very well google it….also
there’s a new product chembuster for the aerial spraying chemtrails this is
serious stuff look up in the sky…google chemtrails they’re poisoning all of
us..

I still have brain fog I hope I feel that air in my head again I always think
about the day I was normal just makes me want to cry I am fighting this as hard
as I can…I hope all of us who suffer from this bs feel better soon.

shelly jordan
30 Sep 2011, 00:17

 

For the fifth time, I tell my story. Diagnosed with RA four years ago. I
accepted. However, I have since done research and been through so many drugs
that dont ghelp. Im now waiting for a research study for Sjorgrens, But to be
honest I thinkI have fibromyalgia. The muscular-skeletol pain is un measurable.
Thanks for the info. and listening.

Tammy F
05 Aug 2011, 09:44

Until I found a doctor who was familiar with fibromyalgia and was diagnosed with
fibro, my fibro fog was mistaken for being over medicated and even drug abuse
and alcohol abuse. So I insisted they drug test me and when the tests came back
negative for drugs and alcohol they started taking CT scans and so on of my
brain. But they did tons of other tests and couldn’t figure out a cause for all
my pain, etc. They started thinking I was crazy…asking if there was any family
history of mental health issues. It was such a blessing when I eventually ended
up with a doctor that knew what was wrong

bea
28 Dec 2010, 11:52

 

i have been having fibro for many years and can totally sympathize with
everybody. i wanted to see if anybody has experience problems with the drug
Saville? My blood pressure and blood sugar went totally out of whack when i
started taking it to the point that i thought i was going to die when my blood
pressure dropped to 59. i am having heart pulpations and dizziness to the point
that i can’t get dressed. i stopped taking saville, but within a week my fibro
problems are back. Does anybody have any knowledge of a natural alternative for
saville? i am really tired of putting all these drugs in my body and i am trying
to do as much as i can natural.

 

   Disclaimer: All content contained within this website
is not intended to treat, cure or diagnose in any

way. All content is commentary or opinion and is protected
under the free speech act.

2011 All Rights Reserved

 

Being diagnosed with Fibromyalgia can be a long battle. You have these symptoms, pain all over and test don’t show anything. Treatment can be difficult and confusing for the patient. There is a lot of confusing attitudes about Fibromyalgia and a lot of conflicting material on the internet for the causes, symptoms and treatments.

Causes and Symptoms of Fibromyalgia from the National Fibromyalgia Association

Causes

– the underlying cause or causes still remain a mystery

– most researchers agree that FM is a disorder of central processing with neuroendocrine/neurotransmitter dysregulation

– the FM patient experiences pain amplification due to abnormal sensory processing in the central nervous system.

– An increasing number of scientific studies now show multiple physiological abnormalities in the FM patient, including:

increased levels of substance P in the spinal cord

low levels of blood flow to the thalamus region of the brain

HPA axis hypofunction

low levels of serotonin and tryptophan

abnormalities in cytokine function

– genetic factors may predispose individuals to a genetic susceptibility to FM

– for some, the onset of FM is slow; however, in a large percentage of patients the onset is triggered by an illness or injury that causes trauma to the body. These events may act to incite an undetected physiological problem already present.

– ongoing research will test the hypothesis that FM is caused by an interpretative defect in the central nervous system that brings about abnormal pain perception. Medical researchers have just begun to untangle the truths about this life-altering disease.

Symptoms

– chronic widespread body pain

– moderate to extreme fatigue

– sleep disturbances

– sensitivity to touch, light, and sound

– cognitive difficulties

– many individuals also experience a number of other symptoms and overlapping conditions, such as irritable bowel syndrome, lupus and arthritis.

Pain

pain of fibromyalgia is profound, chronic and widespread

it can migrate to all parts of the body and vary in intensity

– FM pain has been described as stabbing and shooting pain and deep muscular aching, throbbing, and twitching

neurological complaints such as numbness, tingling, and burning are often present and add to the discomfort of the patient

severity of the pain and stiffness is often worse in the morning

aggravating factors that affect pain include cold/humid weather, non-restorative sleep, physical and mental fatigue, excessive physical activity, physical inactivity, anxiety and stress.

Fatigue

In today’s world many people complain of fatigue; however, the fatigue of FM is much more than being tired after a particularly busy day or after a sleepless night. The fatigue of FM is an all-encompassing exhaustion that can interfere with occupational, personal, social or educational activities. Symptoms include profound exhaustion and poor stamina

Sleep problems

Many fibromyalgia patients have an associated sleep disorder that prevents them from getting deep, restful, restorative sleep. Medical researchers have documented specific and distinctive abnormalities in the Stage 4 deep sleep of FM patients. During sleep, individuals with FM are constantly interrupted by bursts of awake-like brain activity, limiting the amount of time they spend in deep sleep.

Other symptoms/overlapping conditions

Additional symptoms may include:

-irritable bowel and bladder

– headaches and migraines

– restless legs syndrome (periodic limb movement disorder)

– impaired memory and concentration

– skin sensitivities and rashes, dry eyes and mouth

– anxiety, depression

– ringing in the ears

– dizziness

– vision problems

– Raynaud’s Syndrome

– neurological symptoms, and impaired coordination

Causes and Symptoms of Fibromyalgia from the American College of Rheumatology

Causes

– may be different in different people

– however, it is very likely that there are certain types of genes that can predispose people to developing fibromyalgia and other co-occurring conditions

genes alone do not, however, cause fibromyalgia

usually some triggering factor, such as spine disorders, arthritis, trauma, and other types of physical stressors

emotional stressors also may play a triggering role.

– result is changes in the way the body communicates with the spinal cord and brain associated with altered levels of chemicals and proteins in the central nervous system

for the person with fibromyalgia, it is as though the “volume control” is turned up too high in the brain’s pain processing areas.

Symptoms

– defined by chronic widespread muscular pain

fatigue

sleep disturbances

stiffness

cognitive and memory problems

depression and anxiety

more localized pain conditions often occur in patients with fibromyalgia, including:

migraine or tension headaches

temporomandibular disorder

irritable bowel syndrome

gastroesophageal reflux disorder

irritable bladder

pelvic pain syndrome

The symptoms of fibromyalgia and associated conditions can vary in intensity and wax and wane over time.

Stress often worsens these symptoms.

Here is a website for the world wide Rheumatalogists Directory if you need to get help to get a proper diagnoses.

http://www.rheumatology.org/directory/geo.asp

I was checking out the FDA website for something and I came across an article about the new drugs recently approved.

Lupron44

Eligard43

Lupron Depot45

Lupron Depot46

Viadur50

They were all approved on January 20, 2011. They are all made out of leuprolide acetate the same drug Lupron Depot that shut my body down in 2000, now they are bringing it out under different names. (see information on Lupron below).

I was looking through some old paperwork and came across a letter I had written about my experience with the prescription drug Lupron, leuprolide acetate. Here is my story I wrote just after taking Lupron in 2000, thank god we forget pain:

On January 2000, I went to my gynecologist. He diagnosed me with a cyst on my ovary. He said that the drug Lupron would shrink the cyst and I could avoid surgery. I asked about the side effects, he said it was only hot flashes and temporary menopause, but all goes away after the drug is done. He made it sound like a picnic. I thought that the drug was the way to go, sounded like no big deal and to avoid an operation again, why not? (I had my ovary removed surgically when I was 18 due to a cyst).

He gave me a 3 month dose Jan 13, 2000 or 11.25 mg of Lupron Depot in an injection form. Approximately 4 or 5 days later my skin started to crawl throughout my whole body, permanently day after day, creeping through my skin like waves of bugs crawling. I began to have trouble breathing, and was unable to get moving. I went to two different doctors,  was given a prescription by one, told to quit smoking by another. I did both but neither seemed to help.

We had went out to dinner one night because we had pre-arranged it with friends (yes that’s me, didn’t want to wreck anybodies plans even though I was in anaphylactic shock, I am a pretty tough soul!). While I was sitting there all of a sudden it felt like bubbles of liquid going into each of my lower front ribs, one at a time like dominos, then it crept it’s way up throughout my ribs in my whole chest and stayed as severe pain. My chest was crushing with chest pain, and I was having trouble breathing. I felt drained and sick all over and very pale. I laid on the couch for days, not being able to do anything and the pain was only getting worse.

I finally went to the hospital because I knew it was serious and out of my hands. They put me on a heart monitor and admitted me right away. My heart was either beating at 41 bpm. or erratically all over the place. All they could do was fill me with pain medications and anti-inflammatories.  The hot sweats were starting; actually it was more total body sweats yet I was freezing cold. My kidneys were working overtime.

Upon the first discharge from the hospital I got dizzy and fell onto the floor so they kept me another night. They diagnosed muscle-skeletal pain and heart problems due to the Lupron. Day by day different symptoms arrived, that was only the beginning of months of hell that followed for me.

When I stood up my skin felt so heavy it felt like it was falling off my body.

I had muscle-skeletal pain throughout my whole body, esp. the rib and breast bones.

Dyspnea, difficulty breathing.

Body sweats and chills, ghostly-white complexion.

Shrieking skull pain, migraine on right side of head.

I had huge cramps throughout my legs, pain in lower, outside, right leg.

Breast pain, loss of sexual desire (well who could think about sex with all this going on???)

Cold body, temperature 93.3 F

Low heart rate or racing heart.

Stomach swelled up, dehydrated, excessive thirst.

Throat swelled, feeling of choking.

Bowels quit working, kidneys working overtime.

Numb cheeks and limbs.

Visual disturbances, right eye teared constantly.

Nausea, dizziness, shakes.

Spinal tremors, irritability, nervousness.

Sore teeth, left jaw pain.

Cardiac arrhythmia, palpitations.

Insomnia.

Lower back pain.

Intensified rash and swollen lymph nodes.

Every evening at 8 pm my throat would swell and I could actually feel the serum pump out of my throat down into my chest, then throughout my body. The chest and breast pain would increase, my heart would start pumping wildly, my stomach would ache, cramping would increase, body sweats, cold body, and total exhaustion would set in.

I had to spray my entire mid section with muscle pain spray for weeks on end because the drugs didn’t even touch the pain. The horror went on day after day after week after week which turned into months. My Lupus and Fibromyalgia were flaring big time by now. I was gray in color and totally lifeless and I felt like I was going to die. It was the darkest time of my life.

After calling the Doctor who prescribed the Lupron to me, he sent me away saying, go see a cardiologist, there is no way Lupron would do that. It took over 3 months for the drug to quit the “flare effects: and 169 days to be eliminated (supposedly, according to science! I think it is still in my ribs as I have severe rib pain to this day), many natural remedies and 6 months for menstruation to return. Now all that was left was the damage. I also broke two teeth on Lupron.

No one had an antidote to stop this drug from terrorizing my body, so I took my dying body to a Naturopathic Doctor. She put me on some homeopathic medicines and herbals right away and miraculously she took that overwhelming feeling of death away. She said I was grey in color when I came in and that was almost 2 months after the shock set in.

I got my internal orans tested from electro dermal screening and they showed severe stress on all my internal organs, especially the heart, gallbladder, lymphatics, kidneys, bladder, thyroid, liver, adrenals and central nervous system. This was a direct result from the Lupron.

It totally devastated me and my family. Never again! I am going to continue to see a Naturopathic Doctor. She took away the numbness in my cheeks, the swelling in my hands, the shrieking skull pain, the dizziness, the total exhaustion, the rash is clearing up, I have some colour back and some energy.

I still have a long way to go but she helped me out of the severe stress that Lupron put me in. I have seen enough improvement to convince me, Naturopathic medicine is the only way out of a major adverse drug reaction or perhaps any major health crisis. I know who’s hands I feel safe in now.

Isn’t it amazing that they are so willing to pay $1188.00 (times two as it was only half the prescription, I opted out for round 2!)

God, I forgot how ill it made me. I am not a doctor, or a lawyer and this drug is approved by the FDA but not in my lifetime would I recommend it to any human. I actually would warn anyone not to use Lupron, but that is just my opinion through a very bad experience! It’s your body!

This was approved years ago by TAP, they had multi million dollar fines from it, so I suspect these are new companies that want to get in on the sales with this drug too. I think we will be hearing more people being prescribed this drug again. How can the FDA approve

I also would like to note that the cyst was still there after all was said and done. It was the herbals that took the cysts away. Now I believe that I could have avoided surgery when I was 18 as well.

I get the willies through my body when I see or hear the name Lupron. I will write this article but I won’t be reading it again, I just wanted other to know that you could experience side effects. When I was part of the Lupron victims website (10,000+ victims), there was a few deaths as well as heart attacks and stokes beside the multi symptoms and serious organ involvement from thousands of women as well as men. It is a drug given to men for prostrate cancer as well so you might want to check it out too guys. See http://www.lupronvictimshub.com/deaths.html for a long list of male deaths after taking Lupron.

http://www.fda.gov/Drugs/NewsEvents/UCM130961

January 20, 2011

  • DaTscan42 (ioflupane I 123) Injection, GE Healthcare, Approval
  • Eligard43 (leuprolide acetate) Subcutaneous Injection, sanofi-aventis U.S., LLC, Labeling Revision
  • Lupron44 (leuprolide acetate) Injection, Abbott Laboratories, Labeling Revision
  • Lupron Depot45 (leuprolide acetate) Injection, Abbott Laboratories, Labeling Revision
  • Lupron Depot46 (leuprolide acedate) Injectioon, Abbott Laboratories, Labeling Revision
  • Nithiodote47 (sodium nitrite and sodium thiosulfate) Injection, Hope Pharmaceuticals, Approval
  • Trelstar Depot48 (triptorelin palmoate) Intramuscular Injection, Watson Laboratories, Inc., Labeling Revision
  • Vantas49 (histrelin acetate) Subcutaneous Implant, Endo Pharmaceuticals Solutions, Inc., Labeling Revision
  • Viadur50 (leuprolide acetate) Implant, Johnson & Johnson Pharmaceutical Research and Development, LLC, Labeling Revision
  • Zoladex51(goserelin acetate) Implant, AstraZeneca Pharmaceuticals, LP, Labeling Revision
  • Zoladex52 (goserelin acetate) Implant, AstraZeneca Pharmaceuticals, LP, Labeling Revision

Read more other articles on Lupron:

Despite these many risks and negative experiences, manufacturers of leuprolide acetate have continued to market the drug for existing and new uses — most notably, as a treatment for prostate cancer. But a former U.S. Food and Drug Administration medical officer has said that Lupron’s manufacturer, TAP Pharmaceuticals, did not study the drug adequately before or after introducing it to the market, and he alleged that the company hid what it knew about risks of bone density loss, generalized pain, headaches, fluid retention, depression, and immune and nervous system problems, including spinal fracture, convulsions and paralysis.

diclofenac/misoprostol – oral, Arthrotec

SIDE EFFECTS: 

– diarrhea and upset stomach

– nausea

– heartburn

– gas

– stomach pain

– constipation

– headache

– tiredness

– drowsiness

– dizziness

**Rarely, diarrhea can become so severe and persistent that it may lead to dehydration

– severe/persistent diarrhea

– stomach cramps

– severe dizziness

– decreased amount of urine

– muscle weakness

****Tell your doctor immediately if any of these unlikely but serious side effects occur:

– difficult/painful swallowing

– swelling of the hands/feet

– sudden/unexplained weight gain

– vision changes

– hearing changes (e.g., ringing in the ears)

– mental/mood changes (e.g., depression)

– fast/pounding heartbeat

– persistent/severe headache

– fainting 

– unusual/heavy vaginal bleeding 

– menstrual problems/irregular periods

****Tell your doctor immediately if any of these rare but very serious side effects occur:

– change in the amount of urine

– easy bruising/bleeding

– signs of infection (e.g., fever, persistent sore throat)

– unexplained stiff neck

– seizures

******This drug may rarely cause serious (possibly fatal) liver disease. If you notice any of the following rare but very serious side effects, stop taking diclofenac/misoprostol and tell your doctor immediately:

– yellowing eyes/skin

– dark urine

– unusual/extreme tiredness

– severe stomach/abdominal pain

– persistent nausea/vomiting

******A very serious allergic reaction to this drug is unlikely, but seek immediate medical attention if it occurs. Symptoms of a serious allergic reaction may include:

– rash

– itching/swelling (especially of the face/tongue/throat)

– severe dizziness

– trouble breathing

**This is not a complete list of possible side effects. If you notice other effects not listed above, contact your doctor or pharmacist.

 

In Canada – Call your doctor for medical advice about side effects. You may report side effects to Health Canada at 1-866-234-2345.

In the US -Call your doctor for medical advice about side effects. You may report side effects to FDA at 1-800-FDA-1088.

PRECAUTIONS: if you are allergic to either of these drugs;

 aspirin or other NSAIDs – ibuprofen, naproxen, celecoxib

– aspirin-sensitive asthma 

– recent heart bypass surgery 

– certain liver problem 

– kidney disease

– liver disease

– stomach/intestine/esophagus problems – bleeding, ulcers, inflammatory bowel disease

– heart disease

– high blood pressure, stroke, swelling, edema, fluid retention

– dehydration

– blood disorders – anemia)

– bleeding or clotting problems

– asthma

– growths in the nose (nasal polyps)  

**Before having surgery, tell your doctor or dentist that you are using this medication. This drug may make you dizzy or drowsy. Do not drive, use machinery, or do any activity that requires alertness until you are sure you can perform such activities safely.

*Diclofenac may cause:

– stomach bleeding. Daily use of alcohol and tobacco may increase your risk for stomach bleeding

– may make you more sensitive to the sun. Avoid prolonged sun exposure, tanning booths, and sunlamps

– elderly may be more sensitive to the side effects of this drug, especially stomach/intestinal bleeding and kidney effects.

– must not be used during pregnancy. It can harm the unborn baby and mother

*******DRUG INTERACTIONS: This drug should not be used with the following medications because very serious interactions may occur:

– high doses of aspirin and related drugs – salicylates

– cidofovir, other NSAIDs – ketorolac

If you are currently using any of these medications listed above, tell your doctor or pharmacist before starting diclofenac/misoprostol.

anti-platelet drugs – cilostazol, clopidogrel

– oral bisphosphonates – alendronate

– “blood thinners” – enoxaparin, heparin, warfarin

– corticosteroids – prednisone, cyclosporine, desmopressin, digoxin

– high blood pressure drugs – ACE inhibitors such as captopril, angiotensin receptor blockers such as loartan, and beta-blockers such as metoprolol, lithium, methotrexate, pemetrexed, probenecid

– SSRI antidepressants (e.g., fluoxetine, sertraline), “water pills” – diuretics such as furosemide, hydrochlorothiazide, triamterene

– pain/fever drugs – NSAIDs such as aspirin, celecoxib, ibuprofen. These drugs are similar to this medication, so taking one of these drugs while also taking this medication may increase your risk of side effects

*******This document does not contain all possible interactions.

“©2013, WebMD, LLC. All rights reserved”

My 2 cents:

I was prescribed these for probably 15 years. I experienced many of the symptoms above yet the doctor never considered them being a side effect from the drugs they were prescribing.  They then went on to give me more drugs  for the symptoms I was having and send me to specialists for this and that, added more diagnoses and more prescriptions to the mix.  Hmmm??? Beside the added expense to our health care. Believe me too, when you involve more doctors you open yourself up to a power struggle of who is right with what diagnoses and then also the ego of the doctor whom is always right. To be honest, it is hard to find doctors who agree with one another.

Did you read that this is not a complete list of possible side effect? The list just goes on and on. This is because the reports just keep coming in from people so you should keep updated and report your side effects! If you experienced heavy vaginal bleeding they would probably send you to a gynecologist and not even consider your muscle relaxant. Muscle weakness or fatigue you might have a touch of the flu. Abdominal pain, nausea or vomitting probably the same thing or send you for an ultra sound to check your gallbladder. My point here is that one drug can cause so many problems, offer so little cure and it’s side effects or adverse reactions can be masked as disease itself.

Sources:

http://www.medicinenet.com/diclofenac_wmisoprostol-oral_tablet/article.htm

 http://naturalpainreliefforfibromyalgia.com/1026

http://naturalpainreliefforfibromyalgia.com/897

http://naturalpainreliefforfibromyalgia.com/554