I have read story after story from Fibromyalgia sufferers and in the end they all have the same desperation about them. Severe pain and suffering that is dismissed, a total lack of understanding and very little to no compassion. They often leave the doctors office with little or no relief and often more confused than when we went in. It is very difficult to live with the chronic pain and can be harder for family and friends to understand. Sometimes you look fine but you have this gnawing, burning pain that no one can see and extreme fatigue that no one can explain. So we are often looked at as complainers or lazy.
What they don’t know is how they feel when they have the flu is what you have become accustomed to as your everyday life. People get sore muscles and fatigue from the flu or overworking their muscles, with Fibromyalgia you live like that everyday. Feeling like you have been lifting 400 lbs of weight all day. You could do the same thing as a friend and they might experience pain in their muscles for a day or two then they bounce back, you take sometimes take weeks to recover.
Many doctors know little to none about Fibromyalgia so I think they push it off as a case of the lazies. You know, since there is nothing wrong in your blood tests. Do exercise and you will be fine. Like the famous old saying goes, “Take two aspirins and call me in the morning!”
Being a sufferer of Fibromyalgia myself for 21 year + now, I have been through all the humiliation, frustration and ignorance that goes with this “mystery syndrome” of chronic pain that no one understands or can explain because it doesn’t make sense, it is too multi-faceted or the doctor just don’t believe in it. It is met with a lot of skepticism which comes with a lot of frustration for the patient who is desperate to find answers to their pain.
The best thing you can do is to keep Doctor shopping until you have found a compassionate one that understands and has some knowledge and experience with Fibromyalgia. Even better, if you can afford a Naturopathic Doctor or alternative practitioners, they can help a lot. Body work is even better such as Massage, Osteopathy or Chiropractor, they can help sort out the pain if it is internal or external, what pain leaves and what pain returns. Shop around, there are good and bad in everything. The chronic pain itself is hard to live with and can effect the very soul of the sufferer. If you don’t have a compassion or understanding it can be detrimental. There has been many suicides from Fibromyalgia.
I think that Doctors need to stop playing god and start to listen and I mean really listen to their patients. They assume, they judge by appearance, they make an opinion even before knowing all the facts, they dismiss your pain as if you are exaggerating. No one knows your body like you do.
There is too much illness and they don’t have the time to get to know their patients. It seems you are allotted a 5 minute time slot and the doctor is always too busy to really listen or to hear as they might put it “my complaints”. It seemed to me that I was a number waiting in the Doctors office, waiting to be given script #500,602. The thing is script #1 to 500,601 didn’t work so why was I bothering anymore? We don’t know what Fibromyalgia is but we are willing to throw all these drugs at it and hope something works or at least it will shut the patient up until she comes back again with the same complaints or new issues from the side effects.
How can they treat something with drugs that they don’t understand? Isn’t that like giving a car oil in the gas tank? How do they know that these drugs aren’t what is causing it in the first place? My search is to finding the root cause to all my pain. If you would like to follow me in my journey of natural pain relief that works, please feel free to sign up to my newsletter or rss feed and be sure to bookmark the website. As pain allows me, I will fill this website with information that will help guide you to a path of wellness and freedom from chronic pain. Remember, one day at a time, one pain at a time, we will beat it!
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